晚期口腔癌患者术后家庭照顾者的需求现状

doi:10.19438/j.cjoms.2019.01.017

中国口腔颌面外科杂志 ›› 2019, Vol. 17 ›› Issue (1): 82-85.doi: 10.19438/j.cjoms.2019.01.017

晚期口腔癌患者术后家庭照顾者的需求现状

徐诸凤^*, 郁玺玺^*, 王悦平

上海交通大学医学院附属第九人民医院·口腔医学院口腔颌面-头颈肿瘤科, 国家口腔疾病临床医学研究中心,上海市口腔医学重点实验室,上海市口腔医学研究所,上海 200011

收稿日期:2018-04-04 修回日期:2018-06-04 出版日期:2019-01-20 发布日期:2019-02-21
通讯作者: 王悦平,E-mail：18121213995@163.com
作者简介:徐诸凤(1992-),女,本科,护师,E-mail:724047219@qq.com;郁玺玺（1990-）,女,本科,护师,E-mail:yuxixi0601@126.com。^*并列第一作者
基金资助:
上海交通大学医学院附属第九人民医院护理院级基金（JYHL20182116）

Demand status of family cares for postoperative patients with advanced oral cancer

XU Zhu-feng, YU Xi-xi, WANG Yue-ping

Department of Oromaxillofacial Head and Neck Oncology, Shanghai Ninth People's Hospital, College of Stomatology, Shanghai Jiao Tong University School of Medicine; National Clinical Center for Oral Diseases, Shanghai Research Institute of Stomatology & Shanghai Key Laboratory of Stomatology. Shanghai 200011, China.

Received:2018-04-04 Revised:2018-06-04 Online:2019-01-20 Published:2019-02-21

摘要/Abstract

摘要： 口腔癌是头颈部常见的恶性肿瘤。晚期口腔癌患者主要以手术治疗为主,由于专科护士缺乏及社区医院的供不应求,家庭照顾者需承担所有的生活照顾。知识和经验的缺乏,使得他们在照顾过程中产生了一系列需求。本文综述了照顾者的此类需求,以期为临床提供参考。

关键词: 口腔癌, 家庭照顾者, 需求

Abstract: Oral cancer is a common malignant tumor in head and neck. Advanced oral cancer patients are mainly treated with surgery. Due to the lack of specialist nurses and insufficient supply of community hospitals, family cares need to take all life cares. The deficiency of knowledge and experience created a series of needs in the process of care. This article reviewed the needs of cares in order to provide reference for clinical work.;

Key words: Oral cancer, Family care, Demand

中图分类号:

R473.78

徐诸凤, 郁玺玺, 王悦平. 晚期口腔癌患者术后家庭照顾者的需求现状[J]. 中国口腔颌面外科杂志, 2019, 17(1): 82-85.

XU Zhu-feng, YU Xi-xi, WANG Yue-ping. Demand status of family cares for postoperative patients with advanced oral cancer[J]. China J Oral Maxillofac Surg, 2019, 17(1): 82-85.

参考文献

[1] 王安训. 舌鳞状细胞癌侵袭和转移的研究进展[J]. 口腔疾病防治, 2016, 24(5): 261-266.
[2] Parkin DM, Bray F, FerlayJ, et al. Global cancer statistics, 2002[J]. CA Cancer J Clin, 2005, 55(2): 74-108.
[3] Mayne ST, Morse DE, Winn DM.Cancers of the oral cavity and Pharynx[C]//Schottenfeld D, Fraumeni JF, editors. Cancer epidemiology and prevention [M]. 3rd Ed. New York: Oxford University Press, 2006: 674-696.
[4] Chen W, Zheng R, Baade PD, et al.Cancer statistics in China, 2015[J]. CA Cancer J Clin, 2016, 66(2): 115-132.
[5] Doubova SV, Aguirre-Hernandez R, Infante-Castaneda C, et al.Needs of caregivers of cancer patients: validation of the Mexican version of the Support Person Unmet Needs Survey (SPUNS - SFM)[J]. Support Care Cancer, 2015, 23(10): 2925-2935.
[6] Hileman JW, Lackey NR, Hassanein RS.Identifying the needs of home caregivers of patients with cancer[J]. Oncol Nurs Forum, 1992, 19(5): 771-777.
[7] Sklenarova H, Haun MW, Krumpelmann A, et al.Psychometric evaluation of the German version of the Supportive Care Needs Survey for Partners and Caregivers(SCNS-P&C-G) of cancer patients[J]. Eur J Cancer Care (Engl), 2015, 24(6): 884-897.
[8] 陈敏钧. 癌症治疗护理学 [M]. 北京: 人民军医出版社, 2006: 10.
[9] Pahlavanzade S, Khosravi N, Moeini M.The effect of a family need-based program on burden of caregivers of leukemia patients in Isfahan in 2013-2014[J]. Iran J Nurs Midwifery Res, 2014, 19(6): 629-634.
[10] Shin DW, Park JH, Shim EJ, et al.The development of a comprehensive needs assessment tool for cancer-caregivers in patient-caregiver dyads[J]. Psychooncology, 2011, 20(12): 1342-1352.
[11] Girgis A, Lambert S, Lecathelinais C.The supportive care needs survey for partners and caregivers of cancer survivors: development and psychometric evaluation[J]. Psychooncology, 2011, 20(4): 387-393.
[12] Harrington V, Lackey NR, Gates MF.Needs of caregivers of clinic and hospice cancer patients[J]. Cancer Nurs, 1996, 19(2): 118-125.
[13] Dall'Armi L, Simpson GK, Forstner D, et al. The information needs of patients with head and neck cancer and their caregivers: a short report of instrument development and testing[J]. Appl Nurs Res, 2013, 26(1): 40-44.
[14] Zhang YP, Zhao XS, Zhang B, et al.Cross-cultural adaptation and psychometric assessment of the Chinese version of the comprehensive needs assessment tool for cancer caregivers (CNAT-C)[J]. Qual Life Res, 2015, 24(7): 1607-1614.
[15] Longacre ML, Galloway TJ, Parvanta CF, et al.Medical communication-related informational need and resource preferences among family caregivers for head and neck cancer patients[J]. J Cancer Edu, 2015, 30(4):786-791.
[16] Brédart A, Bouleuc C, Dolbeault S.Doctor-patient communication and satisfaction with care in oncology[J]. Curr Opin Oncol, 2005, 17(4): 351-354.
[17] Chen SC, Lai YH, Liao CT, et al.Unmet supportive care needs and characteristics of family caregivers of patients with oral cancer after surgery[J]. Psychooncology, 2014, 23(5): 569-577.
[18] 李师娟. 非言语性沟通在ICU气管切开患者中的应用[J]. 当代护士(中旬刊), 2015, 23(9): 64-65.
[19] Badr H, Lipnick D, Diefenbach MA, et al.Development and usability testing of a web-based self-management intervention for oral cancer survivors and their family caregivers[J]. Eur J Cancer Care (Engl), 2016, 25(5): 806-821.
[20] 马月, 吴蓓雯. 癌症患者营养管理指南解读[J]. 上海护理, 2017, 17(2): 10-15.
[21] 黄卓珊, 张大明, 王友元, 等. 早期吞咽训练对舌癌术后吞咽障碍及生活质量的影响[J].中国口腔颌面外科杂志, 2017, 15(3): 249-253.
[22] 田思维, 喻磊. 快速康复外科理念在舌癌围术期护理的应用观察[J].中国老年保健医学, 2016, 14(5): 118-120.
[23] 王艳晖, 董凤齐. 癌症疼痛患者的主要照顾者心理体验的质性研究[J]. 中国实用护理杂志, 2015, 31(25): 1925-1928.
[24] 娄方丽, 田辉. 癌症病人疼痛管理态度研究进展[J].护理研究, 2017, 31(36): 4591-4595.
[25] 赵贝贝, 娄小平, 康晶晶, 等. 住院癌症患者疼痛管理结局现状及影响因素分析[J]. 郑州大学学报(医学版), 2016, 51(6): 770-774.
[26] 李曼, 孙康. 94例口腔癌患者放疗期间的护理体会[J]. 中国医药指南, 2013, 11(20): 759-760.
[27] 邵惠鸾. 46例口腔癌患者放疗前后护理心得[J]. 临床心身疾病杂志, 2014, 20(z1): 198-199.
[28] 杜桂芹, 夏华. 气管切开留置患者居家照顾者的压力研究分析[J]. 中国卫生标准管理, 2016, 7(13): 13-15.
[29] 唐烨, 许俊芳. 延伸性护理在气管切开术后带管出院患者中的应用[J]. 当代护士(中旬刊), 2016, 24(4): 137-139.
[30] Baghi M, Wagenblast J, Hambek M, et al.Demands on caring relatives of head and neck cancer patients[J]. Laryngoscope, 2007, 117(4): 712-716.
[31] Schaller A, Liedberg GM, Larsson B.How relatives of patients with head and neck cancer experience pain, disease progression and treatment: a qualitative interview study[J]. Eur J Oncol Nurs, 2014, 18(4): 405-410.
[32] Humphris GM.The missing member of the head and neck multidisciplinary team: the psychologist. Why we need them[J]. Curr Opin Otolaryngol Head Neck Surg, 2008, 16(2):108-112.
[33] Balfe M, O'Brien K, Timmons A, et al. The unmet supportive care needs of long-term head and neck cancer caregivers in the extended survivorship period[J]. J Clin Nurs, 2016, 25(11-12): 1576-1586.
[34] 吴鸿雁, 闫欣. 我国城乡居民大病医保问题研究[J]. 福建质量管理, 2017, 38(8): 169.
[35] 王燕香, 柳清霞, 张强, 等. 口腔癌患者照护需求内容的综述[J]. 解放军护理杂志, 2016, 33(23): 36-38.
[36] 杨志芳, 付菊芳, 左秀萍, 等. 晚期癌症患者家庭照顾者希望水平影响因素及与社会支持的相关性研究[J]. 中国护理管理, 2017, 17(5): 625-630.
[37] 王少玲,黄金月.延续护理实践的现状与发展趋势[J]. 中国护理管理, 2017, 17(4): 433-438.

晚期口腔癌患者术后家庭照顾者的需求现状

Demand status of family cares for postoperative patients with advanced oral cancer

PDF (PC)

可视化

摘要/Abstract

引用本文

使用本文

参考文献

相关文章 15

编辑推荐

Metrics

本文评价

[1]	陈伟良. 延长垂直下斜方肌岛状肌皮瓣修复重建大型头颈部缺损[J]. 中国口腔颌面外科杂志, 2023, 21(1): 1-10.
[2]	周瑜, 翁海燕, 司呈云, 段贤捷, 安星妃, 章礼玉. 第8版TNM分期修订版对早期口腔黏膜鳞癌患者预后及危险分层作用的临床研究[J]. 中国口腔颌面外科杂志, 2022, 20(6): 571-576.
[3]	吴梓谦, 殷玉兰, 杨文玉, 张贞, 侯黎莉, 王磊. 口腔癌患者术后舌神经功能障碍与生活质量的关系评价[J]. 中国口腔颌面外科杂志, 2022, 20(5): 449-454.
[4]	樊文慧, 劳峥, 石慧烽, 毕帆, 涂文勇, 胡海生. 3D打印可分离式口腔支架在口腔癌放疗中的摆位准确性研究[J]. 中国口腔颌面外科杂志, 2022, 20(5): 466-470.
[5]	朱博文, 庄海, 毛秋怡, 卜寿山. 4种评分系统判断口腔癌患者术后气管切开需求的准确性评价[J]. 中国口腔颌面外科杂志, 2022, 20(2): 129-134.
[6]	肖育栋, 郭凯欣, 杨乐, 邓威, 曾滨, 张思恩, 劳小媚, 廖贵清, 梁玉洁. 369例口腔癌患者汉语普通话语音数据库的建立与初步评价[J]. 中国口腔颌面外科杂志, 2022, 20(2): 151-157.
[7]	周凯, 李恒勇, 齐晓杰, 葛胜优, 孔钰, 宋凯, 冯元勇, 侯峰, 史海磊, 蒋艳霞, 尚伟. 口腔癌浸润深度对改进肿瘤TNM分期及预后评价的影响[J]. 中国口腔颌面外科杂志, 2021, 19(2): 138-145.
[8]	姚麟, 郭萌萌, 邓璋, 曾威. 改良负压封闭引流术在游离皮瓣修复术后供区植皮中的应用[J]. 中国口腔颌面外科杂志, 2021, 19(2): 163-166.
[9]	潘梦琪, 李志勇, 赵文权. ASCO指南解读：“口腔和口咽鳞状细胞癌颈部管理”[J]. 中国口腔颌面外科杂志, 2021, 19(2): 177-180.
[10]	张鑫睿, 江旖婷, 张晗之, 张美芳, 张海峰, 孙娟, 任国欣. 28例晚期口腔鳞癌患者新辅助化疗围化疗期营养状况及生活质量评估[J]. 中国口腔颌面外科杂志, 2020, 18(6): 516-520.
[11]	王延，蒋通辉，庄海，张继生，卜寿山. 术前肠内营养支持治疗在口腔鳞癌患者加速康复中的应用[J]. 中国口腔颌面外科杂志, 2020, 18(2): 122-126.
[12]	叶海春, 高先连, 任阳, 李丽. 早期系统化康复训练在口腔癌术后游离皮瓣修复患者中应用效果的meta分析[J]. 中国口腔颌面外科杂志, 2020, 18(2): 171-176.
[13]	尚伟, 郑家伟. 2019年NCCN口腔口咽癌诊疗指南更新解读[J]. 中国口腔颌面外科杂志, 2019, 17(6): 481-485.
[14]	李捷, 陈巨峰, 冼淡. 巨噬细胞来源的白细胞介素6对口腔鳞癌细胞增殖活性的影响[J]. 中国口腔颌面外科杂志, 2019, 17(6): 503-507.
[15]	高策, 杨小琛, 徐豪越, 葛胜优, 冯元勇, 卜令学, 贾暮云, 王双义, 陈红华, 陆海军, 宋凯, 尚伟. 56例合并系统性疾病的口腔癌患者的治疗效果评价[J]. 中国口腔颌面外科杂志, 2019, 17(3): 280-284.